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Severe early-onset obesity v1.22 BSN Zornitza Stark Phenotypes for gene: BSN were changed from Epilepsy; developmental delay; obesity to Neurodevelopmental disorder (MONDO:0700092), BSN-related
Severe early-onset obesity v1.20 BSN Sinead OSullivan gene: BSN was added
gene: BSN was added to Severe early-onset obesity. Sources: Literature
Mode of inheritance for gene: BSN was set to MONOALLELIC, autosomal or pseudoautosomal, NOT imprinted
Publications for gene: BSN were set to 40393460
Phenotypes for gene: BSN were set to Epilepsy; developmental delay; obesity
Review for gene: BSN was set to GREEN
Added comment: Guzman et al 2025: Described 12 additional patients with missense (3/12) and premature termination variants (9/12) which included de novo and inherited variants, suggesting incomplete penetrance.

They assessed all reported patients (n=29) which revealed common clinical characteristics including epilepsy(13/29), febrile seizures (7/29), generalised tonic-clonic seizures (5/29), and focal-onset seizures (3/29). Behavioural phenotypes were present in almost half of all individuals (14/29), which included ADHD (7/29) and autistic behaviour (5/29). Additional common features included developmental delay (11/29), obesity (10/29), and delayed speech (8/29). In adults with BSN PTVs, milder features were common, suggesting phenotypic variability, including a range of individuals without obvious neurodevelopmental features (7/29).
Sources: Literature
Severe early-onset obesity v1.5 LEPR Zornitza Stark Tag treatable tag was added to gene: LEPR.
Tag clinical trial tag was added to gene: LEPR.
Severe early-onset obesity v0.25 LEPR Zornitza Stark Marked gene: LEPR as ready
Severe early-onset obesity v0.25 LEPR Zornitza Stark Gene: lepr has been classified as Green List (High Evidence).
Severe early-onset obesity v0.25 LEPR Zornitza Stark Publications for gene: LEPR were set to 24611737; 27225180; 23275530; 25751111; 26925581
Severe early-onset obesity v0.24 LEPR Zornitza Stark reviewed gene: LEPR: Rating: GREEN; Mode of pathogenicity: None; Publications: 17229951, 29545012; Phenotypes: Obesity, morbid, due to leptin receptor deficiency (MIM#614963); Mode of inheritance: BIALLELIC, autosomal or pseudoautosomal
Severe early-onset obesity v0.24 LEP Zornitza Stark Marked gene: LEP as ready
Severe early-onset obesity v0.24 LEP Zornitza Stark Gene: lep has been classified as Green List (High Evidence).
Severe early-onset obesity v0.24 LEP Zornitza Stark Publications for gene: LEP were set to
Severe early-onset obesity v0.23 LEP Zornitza Stark reviewed gene: LEP: Rating: GREEN; Mode of pathogenicity: None; Publications: 9202122, 12393845, 15472169, 25551525, 7984236; Phenotypes: Obesity, morbid, due to leptin deficiency, MIM# 614962; Mode of inheritance: BIALLELIC, autosomal or pseudoautosomal
Severe early-onset obesity v0.0 LEPR Zornitza Stark gene: LEPR was added
gene: LEPR was added to Severe early-onset obesity. Sources: Genomics England PanelApp,Expert Review Green
Mode of inheritance for gene: LEPR was set to BIALLELIC, autosomal or pseudoautosomal
Publications for gene: LEPR were set to 24611737; 27225180; 23275530; 25751111; 26925581
Phenotypes for gene: LEPR were set to Obesity, morbid, due to leptin receptor deficiency, OMIM:614963
Severe early-onset obesity v0.0 LEP Zornitza Stark gene: LEP was added
gene: LEP was added to Severe early-onset obesity. Sources: Genomics England PanelApp,Expert Review Green
Mode of inheritance for gene: LEP was set to BIALLELIC, autosomal or pseudoautosomal
Phenotypes for gene: LEP were set to Obesity, morbid, due to leptin deficiency, OMIM:614962