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Skeletal dysplasia v1.115 LRRFIP1 chirag patel Marked gene: LRRFIP1 as ready
Skeletal dysplasia v1.115 LRRFIP1 chirag patel Gene: lrrfip1 has been classified as Red List (Low Evidence).
Skeletal dysplasia v1.115 LRRFIP1 chirag patel gene: LRRFIP1 was added
gene: LRRFIP1 was added to Skeletal dysplasia. Sources: Other
deep intronic tags were added to gene: LRRFIP1.
Mode of inheritance for gene: LRRFIP1 was set to MONOALLELIC, autosomal or pseudoautosomal, NOT imprinted
Phenotypes for gene: LRRFIP1 were set to Spondylodysplastic-erosive early-onset scoliosis
Review for gene: LRRFIP1 was set to RED
Added comment: ESHG 2026

Multiple individuals from 1 large multigenerational family with early-onset scoliosis, with a unique pattern of spondylodysplastic elements and progressive endplate erosion. Penetrance was 100% in the family. Linkage analysis and WGS identified a rare noncoding variant in the regulatory element in intron 1 of the LRRFIP1 gene (c.96+34737C>T). The variant segregated with disease in the family.

Short- and long-read RNA sequencing in patient fibroblasts showed altered transcription factor binding and alteration of relative LRRFIP1-isoform expression. Differential gene expression analyses in patient fibroblasts showed alterations in Wnt-signaling during somitogenesis, extracellular matrix organization and TNF-a/NF-kb signaling, partially overlapping with features of common spinal disorders such as Ankylosing Spondylitis. Lrrfip1-knockout mouse had a significantly increased prevalence of kyphoscoliosis.

Rare variant enrichment analysis using genome data from UK Biobank participants showed significant enrichment of LRRFIP1-variants in individuals with idiopathic scoliosis.
Sources: Other