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Genomic screening in children: BabyScreen+ v0.53 TNFRSF11B Lilian Rudd Marked gene: TNFRSF11B as ready
Genomic screening in children: BabyScreen+ v0.53 TNFRSF11B Lilian Rudd Gene: tnfrsf11b has been classified as Green List (High Evidence).
Genomic screening in children: BabyScreen+ v0.53 TNFRSF11B Lilian Rudd Classified gene: TNFRSF11B as Green List (high evidence)
Genomic screening in children: BabyScreen+ v0.53 TNFRSF11B Lilian Rudd Gene: tnfrsf11b has been classified as Green List (High Evidence).
Genomic screening in children: BabyScreen+ v0.52 TNFRSF11B Lilian Rudd gene: TNFRSF11B was added
gene: TNFRSF11B was added to Genomic screening in children: BabyScreen+. Sources: Expert list
Mode of inheritance for gene: TNFRSF11B was set to BIALLELIC, autosomal or pseudoautosomal
Publications for gene: TNFRSF11B were set to PMID: 29080812; 25108083; 34166796
Phenotypes for gene: TNFRSF11B were set to Paget disease of bone 5, juvenile-onset MIM#239000
Review for gene: TNFRSF11B was set to GREEN
Added comment: Strong gene disease association
Causes generalised rapid bone turnover due to osteoprotogerin (OPG) deficiency
Short stature, progressive long bone deformities, fractures, vertebral collapse, skull enlargement, and hyperostosis with progressive deafness - also vascular risk of calcification and aneurysms
Variable age of onset - mostly early childhood but with bi-allelic missense can be later onset
Treatment evidence is from case reports or case series only.
Bisphosphanates - available and if started early alter disease course
recombinant OPG - available in clinical trials for other indications only
denosumab - monoclonal antibody - tried in a handful of patients, not sufficient evidence in children.
Sources: Expert list